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Neurofibromatosis (NF) is a genetic disorder that causes tumors to form on nerves anywhere in the body. If your child is diagnosed with NF, you want a dedicated team of experts to guide you in the most current NF management and treatment protocols. The Comprehensive Neurofibromatosis Clinic (NF Clinic) at Children’s Hospital Los Angeles provides the highest level of care.
We’re part of the Children’s Tumor Foundation’s worldwide Neurofibromatosis Clinic Network (NFCN), which advances treatment and promotes education and research for children with NF. Our team of NF specialists are dedicated to providing excellence in NF clinical care based on the most current management guidelines. They also collaborate with other specialities to coordinate care for every patient based on their individual needs.
Specialists from CHLA’s Division of Neurology and Division of Medical Genetics jointly run our NF clinic. After consulting with one of our neurofibromatosis experts, you may receive recommendations for additional care. Your child will receive comprehensive, coordinated treatment from experts who specialize in:
Children’s Hospital Los Angeles is a member of the U.S. Department of Defense’s Neurofibromatosis Clinical Trials Consortium (NFCTC). The consortium runs multi-center clinical trials that provide treatment options for a variety of medical complications associated with NF1 and NF2.
Participating in the consortium gives our patients access to the most current NF research and clinical trials. CHLA is the only NFCTC site on the West Coast.
Our multidisciplinary team offers advanced treatment and support for neurocutaneous disorders, including: