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Children’s Hospital Los Angeles is home to pediatric experts specializing in neurocutaneous disorders. These conditions include the neurofibromatoses, tuberous sclerosis complex, Sturge-Weber syndrome and other complex genetic syndromes that require specialized therapies.
The best pediatric neurocutaneous disorder care comes from an experienced multidisciplinary team, and you’ll find it at Children’s Hospital. Our highly skilled pediatric specialists deliver comprehensive care reflecting the latest science in neurocutaneous disorder treatment. We also play an active role in developing new therapies that offer additional hope for healing.
Caring for children with neurocutaneous disorders requires an experienced multidisciplinary team to coordinate medical care over a child’s lifetime. Children’s Hospital providers have extensive experience caring for children with these medical conditions. Involved specialists work closely together to make sure our patients receive excellent care in a collaborative environment with access to the most current treatments.
The most common neurocutaneous disorders our program manages include:
Because neurocutaneous disorders can affect many organs of the body, children with these medical problems are often followed by multiple subspecialists at Children’s Hospital. Since every patient’s disorder looks different, our providers take an individualized approach and provide personalized care plans. Our program offers:
The care team for children with neurocutaneous disorders may include providers with expertise in:
Additional therapies and services are available from experts in:
Children’s Hospital is a member of the U.S. Department of Defense’s Neurofibromatosis Clinical Trials Consortium (NFCTC). The consortium runs multi-center clinical trials that provide treatment options for a variety of medical complications associated with NF1 and NF2.
Participating in the consortium gives our patients access to the most current NF research and clinical trials. Children’s Hospital is the only NFCTC site on the West Coast.
Our Comprehensive Neurofibromatosis Program is recognized as a member of the Children's Tumor Foundation NF Clinic Network.
The Children’s Hospital Tuberous Sclerosis Program is recognized by the Tuberous Sclerosis Alliance within their clinic network.