Comprehensive Neurofibromatosis Clinic

Neurofibromatosis (NF) is a genetic disorder that causes tumors to form on nerves anywhere in the body. If your child is diagnosed with NF, you want a dedicated team of experts to help you navigate your treatment options. The Comprehensive Neurofibromatosis Clinic (NF Clinic) at Children’s Hospital Los Angeles provides the highest level of care.

We’re part of the Children’s Tumor Foundation’s nationwide Neurofibromatosis Clinic Network (NFCN), which advances treatment and promotes education and research for children with NF. Our team works together to identify and manage your child’s NF. We supplement treatment with genetic counseling services and access to the latest NF research and clinical trials.

Conditions We Treat

Our multidisciplinary team offers advanced treatment and support for neurocutaneous disorders, including:

  • Neurofibromatosis type 1 (NF1)
  • Neurofibromatosis type 2 (NF2)
  • Schwannomatosis

Our Care Team

Specialists from CHLA’s Division of Neurology and Division of Medical Genetics jointly run our NF clinic. After consulting with one of our neurofibromatosis experts, you may receive recommendations for additional care. Your child will receive comprehensive, coordinated treatment from experts who specialize in:

  • Neurology, neuro-oncology and neurosurgery
  • Medical genetics
  • General oncology, cardiology and endocrinology
  • Ophthalmology, audiology and ENT
  • Orthopaedic, plastic and general surgery
  • Child development and social work
  • Radiology services
  • Pain management

Clinical Trials

Children’s Hospital Los Angeles is a member of the U.S. Department of Defense’s Neurofibromatosis Clinical Trials Consortium (NFCTC). The consortium runs multi-center clinical trials that study a variety of medical complications associated with NF1 and NF2.

Participating in the consortium gives our patients access to the most current NF research and clinical trials. CHLA is the only NFCTC site on the West Coast.