Surgical Decision Making for Children (SDM) in Neuromuscular Scoliosis (NMS)
Understand the experiences of patients and parents in treatment decision making for children with Neuromuscular Scoliosis (NMS).
Understand the experiences of patients and parents in treatment decision making for children with Neuromuscular Scoliosis (NMS).
The primary aim of this registry will be to identify genes and/or biologic and environmental factors that either cause these tumors or increase one's risk for developing them. Ultimately, research using this registry may result in improved diagnosis, more effective treatments and possibly prevention.