Surgical Decision Making for Children (SDM) in Neuromuscular Scoliosis (NMS)

IRB
CHLA-20-00412
Experiences in Surgical Decision Making for Children with Neuromuscular Scoliosis

Understand the experiences of patients and parents in treatment decision making for children with Neuromuscular Scoliosis (NMS).

Study Details
Keywords
neuromuscular scoliosis NMS, spine, curvature of the spine
Study Type
Observational
Eligibility
Adult caregivers (parents/legal guardians that are 18+) of children with NMS who were 8-18 years of age at the time of orthopedic consultation and underwent orthopedic consultation for initial definitive NMS treatment (spinal fusion)
Does this study also recruit healthy volunteers?
No
Enrollment Status
Open
Coordinator Contact
Joaquin Vega
Contact Email
jovega@chla.usc.edu
Coordinator Contact
Taydin Macon
Contact Email
tmacon@chla.usc.edu