KiNDD Lab: JETS-JASPER Early Intervention for Tuberous Sclerosis Complex Study

Purpose of Study

We are studying the effects of early behavioral intervention (JASPER) on developmental outcomes in infants and toddlers with Tuberous Sclerosis Complex (TSC). We focus on social-communication skills, as these are tightly linked to the development of autism spectrum disorders (ASD). The overarching goal of our research is to improve outcomes in infants with TSC by conducting rigorous, innovative research in treatment, using both brain and behavioral measures to study the effects of treatment.

Who can participate?

We are currently enrolling children, between the ages of 12-36 months, who have a diagnosis of TSC to participate in this intervention. If your child is not yet 12 months old, you may still begin the enrollment process; if your child is older than 36 months, you may be eligible for a single time-point assessment.

What does the study involve?

Participants can be assessed remotely or in person at CHLA.

Electroencephalogram (EEG)

EEG is a way for us to study the dynamics of neural networks and measure electrical activity in infant brains. The EEG will take around 15 minutes. Your child will wear a mesh cap with small sensors that measure brain signals while videos and sounds are played and images are shown.

Behavioral Assessments

Cognition and development of participants will be assessed at their first time point visit. These measures will be administered by a trained clinical psychologist.

If you are not able to commit at this time, please contact our study coordinators to find out if you can still be involved in our research!

Call to participate

Want to participate in a research study? Please email autismresearch@chla.usc.edu to get in touch with one of our study coordinators.

Links

Tuberous Sclerosis Fact Sheet—National Institute of Neurological Disorders and Stroke