CHLA Clinical Research Studies

Having volunteers participate in research studies and clinical trials is critical to our research efforts. Thousands of children and families are involved in our patient-centered studies every year. Many of the treatments used today are based on the results of past research studies and clinical trials conducted with our patients. Our scientific and clinical experts take the best ideas from the laboratory -- to the patient -- in the form of promising new treatments.

By searching our study directory, you may identify research that could impact the life of your child or of another child you know. Because the number of available research studies and clinical trials for children nationwide is small, every participant makes a significant contribution.

In addition to enrolling children with certain diseases in order to study treatments and prevention of those diseases, we also need to study healthy children. Ask your child’s doctor about volunteer study options that may be suitable for your child.

Please contact the study staff listed in your search results for more information.

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Study Details - ID: CHLA-18-00340
Health/Science/Disease Category:
X-linked Hypophosphatemia
Purpose of Research:
To collect information on the long-term effects of XLH on children and adults who have participated in burosumab clinical trials, adults and children who have not participated in burosumab clinical trials, and who may or may not have been treated with burosumab during the course of the study
Short Name:
Full Title of Study:
X-linked Hypophosphatemia Disease Monitoring Program – (XLH-DMP)
Phase/Type of Study:
Phase 4/drug treatment
Child, Adult, Older Adult X-linked Hypophosphatemia
Time Commitment/Requirements:
10 years with 13 visits. Compensation provided.
Primary Investigator:
Anna Ryabets-Lienhard, DO
Coordinator Contact Name:
Sharon Tang
Phone Number:
Clinical Trials .Gov Identifier: