Multidisciplinary Neuromuscular Center

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The Neuromuscular Disorders Center in the Neurological Institute at Children’s Hospital Los Angeles cares for hundreds of children annually with genetic, autoimmune, and congenital conditions of the neuromuscular system. We are a participating center in multiple multi-center neuromuscular trials. Additionally, we have multiple investigator initiated neuromuscular research projects.

About the Multidisciplinary Neuromuscular Center

  • Conditions, Treatments and Services
  • Our Expert Team
  • Certifications and Accreditations
  • Endorsements

We offer comprehensive care and the most up-to-date treatments for:

  • Duchenne’s muscular dystrophy (program)
  • Becker muscular dystrophy (program)
  • Limb girdle muscular dystrophy
  • Congenital muscular dystrophy
  • Charcot-Marie-Tooth disease
  • Spinal muscular atrophy (program)
  • Myasthenia gravis and congenital myasthenia syndromes
  • Myotonic disorders
  • Congenital myopathy (including nemaline rod myopathy and RYR-1 myopathies)
  • Brachial plexus injury
    • Ortho
    • Plastics
  • Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
  • EMG/NCV (Program)
  • Other rare neuromuscular disorders

Services provided include:

  • Pulmonary function tests
  • Pediatric sleep studies
  • Pediatric electromyography (EMG)/NCV
  • Electrocardiogram (EKG)
  • Echocardiogram
  • X-rays
  • DEXA scan
  • Cardiac MRI
  • MRI of the brain and spinal cord
  • Neuromuscular ultrasound
  • Interventional radiology procedures
  • Diagnostic and surveillance labs
  • Genetic testing
  • Physical and occupational therapists experienced in neuromuscular care
  • Exon 51 treatment for Duchenne muscular dystrophy (Exondys51)
  • Nusinersen treatment for spinal muscular atrophy (Spinraza)
  • Surgery
    • Scoliosis
    • Biopsy
    • Thymectomy
    • Clinical trials

Meet our team

The Center brings together a team of specialists from all corners of the hospital to deal with issues that often accompany neuromuscular disorders, including breathing and sleep issues, heart failure, scoliosis and more. Patients can see Board-certified subspecialists from numerous divisions in one single visit, including:

  • Neurology
  • Orthopedics
  • Cardiology
  • Pulmonology
  • Social Work
  • Nutrition Services
  • Physical and Occupational Therapy
  • Nurse Care Management

Other departments we partner with include:

  • Neurosurgery
  • Medical Genetics
  • Endocrinology
  • Gastroenterology

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Sponsored by the Muscular Dystrophy Association (MDA) and Parent Project Muscular Dystrophy (PPMD), we are certified as an MDA Multidisciplinary Neuromuscular Care Center, a PPMD Certified Duchenne Center, and a California Children’s Services Neuromuscular Center of Excellence.

Patient and Family Support

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  • Patient and Family Resources

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Family Support