Physical Activity and Excercise with von Willebrand Disease

It is important for a child with von Willebrand Disease (vWD) to be in good physical health because it will lead to less bleeds.  This is especially true for people with Type 3 vWD.

Exercise can raise the level of von Willebrand factor (vWF). vWF and factor VIII are hooked together and flow in the blood.  vWF is released in the blood during moderate to high intensity exercise. As a result there is more vWF flowing in the blood.

"Perceived exertion” can indicate the intensity of certain exercises. Perceived exertion shows how hard the body is working. It is based on the physical feelings a child has during a physical activity. This includes:

  • Raised heart rate
  • Harder breathe (raised breathing rate or respiration)
  • More sweat
  • Muscle fatigue or tired muscles

An example of exercising at a moderate to high intensity level, is breathing so hard while hiking up a hill, that one cannot talk to a friend.

Exercising helps a child maintain a healthy weight and builds self esteem. Remember simple activities like:

  • Taking the stairs rather than the elevator
  • Parking further from a destination
  • Exercising as a family

These activities are a fun and easy way to bring exercise into the day without taking too much time.  Remember, exercise needs to be FUN, FREQUENT and FAMILY FEASIBLE!

Physical Activity, Sports and von Willebrand Disease

For young children with all types of von Willebrand Disease (vWD), it is very important to let them try a wide range of physical activities and sports so they can find out what they like to do.

Most children with mild vWD participate in all kinds of activities. This includes sports like soccer, or higher risk sports like surfing and skiing. Children with Type 3 VWD may find that these activities lead to serious bleeding.

A valuable resource is the National Hemophilia Foundation’s (NHF) booklet, Playing It Safe: Bleeding Disorders, Sports and Exercise

Protection

The best way to protect yourself or your child is to make sure they follow the latest safety guidelines for all children and young adults involved in sports. For example:

  • Helmets for bicycling, rollerblading, skiing and snowboarding
  • Shin guards and a helmet for soccer

Contact our clinical team to ask specifically about what physical activities children can play and the about the necessary protection.