Rett Clinic

AVAILABILITY 2nd & 4th Wednesdays (1 - 5 p.m.) WHERE USC UCEDD at CHLA 3250 Wilshire Blvd., Suite 500 Los Angeles, 90010 ELIGIBILITY All children & youth with Rett Syndrome from birth to age 21. REFERRALS By phone: 323-323 361-3849 By fax: 323-361 8305 INSURANCE We accept most insurance plans, including California Medi-Cal. We are committed to caring for all individuals with Rett syndrome regardless of their financial circumstances. ADDITIONAL INFORMATION Noreen Clarke Sheehan, RN, MSN  Email or call 323-361-3849 Kathryn Smith, RN, MN  Email or call 323-361-8301

Core Services

Services in our Rett Clinic include an interdisciplinary team that can provide evaluation and consultation in the following areas:

• Seizures
• Sleep and breathing disturbances
• Behavioral concerns
• Nutrition and feeding issues
• Motor disabilities
• Communication challenges

Core Team Members

Our Core Team consists of the following disciplines:

• Developmental Pediatrics
• Family Support
• Neurodevelopmental Pediatrics
• Neurology
• Nursing
• Nutrition
• Occupational Therapy
• Physical Therapy Psychology
• Social Work
• Speech and Language Pathology
• Other specialists are available for consultation as needed

Clinic Background

The Rett Syndrome Clinic at the University of Southern California, Center for Excellence in Developmental Disabilities at our hospital began with a request from the parents from the Southern California Chapter of the International Rett Syndrome Foundation (IRSF) because they had to travel too far to find care for their daughters with Rett syndrome. They asked the USC UCEDD to develop a Rett clinic drawing on their expertise in interdisciplinary care for individuals with developmental disabilities. The USC UCEDD at Children's Hospital Los Angeles Rett Syndrome Clinic is one of only two such clinics in California and one of only a few centers in the United States that specializes in the diagnosis and comprehensive care of children and youth with Rett syndrome. The USC UCEDD CHLA Rett Syndrome Clinic and is also an interdisciplinary training clinic, staffed by faculty from the Leadership Education in Neurodevelopmental Disabilities (LEND) Program which introduces new professionals to the condition and helps prepare for a new generation of providers to care for individuals with Rett syndrome.